Friday, March 2, 2012

And so it begins...

Today I was diagnosed with Primary Biliary Cirrhosis.

For those that don't know what that is, here a link-

http://digestive.niddk.nih.gov/ddiseases/pubs/primarybiliarycirrhosis/

I am feeling like I'm totally falling apart. I originally had just gone in to the doctor for a routine blood test- I felt (and feel) ok!

Then my liver enzymes were way too high.

ALP 937 u/l
AST 235 u/l
ALT 389 u/l

Plus my bilirubin is a bit high.

So then I got an AMA test - that's anti mitochondrial antibodies. They shouldn't exists at all- or be very low. Anything over 25 u/l is a positive for PBC. Mine came back 107.6 u/l. So yea, I guess that's a positive...

So I also got an MRI (MRCP). And they also found an enlarged spleen (probably from the PBC) and a spot on my right lung.

So I have to get more testing for my lung, including a CT scan.

AND

I have known I had nodules on my thyroid since 2007. I have had several biopsies done from 2007-2010. Then I stopped going. Well one of them went from 5mm to 2.5cm since then...so I'll have to get another biopsy done- this time by a surgeon...

And to top it all off I have an ear infection from my allergies! Ugh.

Seriously?! I didn't even feel sick!!

This medical stuff is just a small part (imagine that!) of all the shit going on in my life right now. I can say I definitely didn't need more on my plate, but I'm a big girl and I will deal with it. More to come on the other topics...

I'm creating this blog to vent, but to also (mostly) keep family and friends updated with what's going on. I also plan to use it to talk about anything and everything bothering me or just going on in my life, good or bad.

Thanks for joining me! Stay tuned!

2 comments:

  1. I love you . I am here for you., any time of day....

    ReplyDelete
  2. Tammy I love you and miss you. I am always here whenever you need me and wherever!

    ReplyDelete

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